Share Your Story
Thank you for sharing your story with us. We hope that COMPARE-UF can be a community of women who learn from one another’s experiences living with fibroids.
Here are some questions to consider to help you start:
- How did you first learn about fibroids?
- What symptoms were you having?
- How have fibroids affected your quality of life? Are there things you don’t do because of your fibroids?
- How have fibroids affected your family?
- Have you had any experiences with fibroids that you can laugh about now?
Submit your story through our secure website. We will ask for your permission before posting.
Thank you to others for you story. It inspires me to share mine. My name is Diane, and I was diagnosed with fibroids in February, 2016. One month later I was in surgery for a hysterectomy!
In July of 2014 I lost my father who was in hospice for three years … yes, three years! In May of 2015 it was confirmed my mom, who was 73, needed valve replacement surgery. My boyfriend and I decided I would move back to WI to help my mom and to help care for my handicapped sister with cerebral palsy … life was busy!
We handled Mom’s dental work prior to her open-heart surgery. The week of Thanksgiving that year she had her surgery, and by Thanksgiving Day she had a pig valve. She now required therapy time three times a week!
As she was healing, I was feeling worse. Her energy level picked up, and I wanted to crawl into bed. I wasn’t fitting in my clothes right but figured it was mom’s good food! Why did I have to go to the bathroom all the time? And I mean NOW!! The pressure! I remember thinking: I am only 40 and I don’t dare laugh, sneeze, cough, hit a bump, or trip, because I could not hold anything back. I started thinking “it’s just me,” ignored it, and continued making sure my mom was getting stronger.
By February 2016, Mom was done with therapy and I moved back to Minnesota. I made an appointment to see if maybe the IUD I had placed in 2012 was causing these problems. The doctor and I chatted a little bit, and he asked to do a vaginal scope … Shortly after starting he stopped and said he was done and we could chat some more.
He explained to me about fibroids, and that I was going to have to have a hysterectomy sooner rather than later. By the first part of March, I was in surgery! They ended up doing a full incision—they were not able to do vaginal hysterectomy but did try. I believe I had 3 fibroids, but one was large. When they weighed my uterus, it was two-and-a-half pounds! I spent a little over 24 hours in the hospital.
Recovery had its challenging moments but was considerably tolerable compared to even some of what I was feeling before the surgery. Once home, I took pain medicine for less than a week and was walking as much as I could take. Within a month I felt great! And still do 2 1/2 years later!
I would like to thank you all for your research and all that you do to help women like myself! Thank you for asking me to participate in your research, and I am glad to be able to help others, hopefully.
Sincerely and with love,